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慢性乙型肝炎患者自我管理现状调查与分析
作者:林兆霞  赵晓芳  刘晨云  王暄洁  王春华 
单位:首都医科大学附属北京地坛医院 北京 100015 
关键词:肝炎 乙型 慢性 自我管理 依从性 
分类号:
出版年,卷(期):页码:2015,7(4):64-68
摘要:

摘要:目的 对慢性乙型肝炎(CHB)患者自我管理的现状进行调查分析,并提出相应的建议。方法
在患者知情同意下,按方便取样的方法选取门诊与住院CHB患者各180例为研究对象,采用患者自我
管理问卷进行调查。调查问卷在参考有关文献及专家咨询的基础上自行设计,预试验问卷的专家效
度CVI = 0.87,问卷的Cronbach’s α = 0.82。问卷内容包括遵医嘱用药、避免医嘱外用药、提供病史、
定期复查、家人检查、情绪调整、生活方式等。结果 患者定期复查率较低(57.7%)。情绪调整及生
活方式处于中等水平,戒烟、戒酒、防护处于较好水平,饮食、休息与睡眠处于中等水平,合理运
动较差。文化程度、经济状况对CHB患者的情绪调整与生活方式有影响。病程长短对CHB患者的生
活方式有影响。结论 CHB患者社会基础状况较差,自我管理行为有待提高,系统化健康管理有利于
提高CHB患者自我管理水平;需要培养高素质的慢性病毒性肝炎临床护理专家,参与CHB患者院内
外连续的个体化健康管理。可以利用信息化手段对患者进行健康管理。

Abstract: Objective To investigate and analyze the self-management of 360 chronic hepatitis B patients and
make relevant recommendations. Methods With the informed consent, 180 outpatients and 180 hospitalized
patients with chronic hepatitis B were selected according to the convenience sampling method. All of them
were investigated by the patient self-management questionnaire. The questionnaire was designed on the
basis of reference literatures and expert consultation, the expert validity (CVI) of the preliminary experiment
questionnaire was 0.87 and the questionnaire Cronbach’s alpha = 0.82. Questionnaire contents included
prescribed medication, avoiding using medicines out of the doctor’s advice, providing medical history, regular
checking, family checking, emotional adjustment, lifestyle, etc. Results The regular check rate of the patients
was low (57.5%). The emotional adjustment and lifestyle were in the medium level. Smoking, drinking and
protection were in good condition. Diet, rest and sleep were in the medium level. Reasonable movement is
poor. Cultural level and economic conditions influenced the emotional adjustment and lifestyle of patients
with CHB. The course of disease influenced the lifestyle of patients with CHB. Conclusions Social basis of
patients with chronic hepatitis B is still low. Self-management behavior needs to be improved. Systematic
health management will help improving the level of self-management of chronic hepatitis B patients. High
quality clinical nurse specialists need to be nurtured. Clinical nurse specialists are needed to participate in the
individualized health management inside and outside hospital for treatment of chronic hepatitis B patients.
Information technologies for health management should be used.

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